What Is Hemophilia?
Hemophilia (heem-o-FILL-ee-ah) is a rare bleeding disorder in which the blood doesn't clot normally.
If you have hemophilia, you may bleed for a longer time than others after an injury. You also may bleed inside your body (internally), especially in your knees, ankles, and elbows. This bleeding can damage your organs and tissues and may be life threatening.
Overview
Hemophilia usually is inherited. "Inherited” means that the disorder is passed from parents to children through genes.
People born with hemophilia have little or no clotting factor. Clotting factor is a protein needed for normal blood clotting. There are several types of clotting factors. These proteins work with platelets (PLATE-lets) to help the blood clot.
3 out of my 4 kids have Hemophilia.I have 2 boys with it,8 and 3,both severe.My daughter is a carrier and has mild Hemophilia.I am a carrier as well.We found out our 2nd son had it when he was circumcised and wouldn't stop bleeding.I found out I was a carrier with my 3rd pregnancy.
Some may wonder...and I know they do....why would we keep having kids knowing I carry this?Well.....we take risks everyday just walking out the door!!!! ANY pregnant woman takes a risk with EVERY single pregnancy!Our risk is 50/50 with each pregnancy.My kids are my LIFE and I wouldn't trade it for the world!!!! It has made me appreciate my kids even more.And you what?Even though what they have is horrible...it could ALWAYS be worse! Obviously,more than likely these ppl who have these thoughts,probably luckily have "healthy" children and can't possibly understand our lives. I get the same thing on the size of our family! Some ppl question that as well.So,no matter what,there will always be ppl out there to question something.
While my kids aren't 100% "healthy",they are perfect to us and at the end of the day,THAT'S all that matters! If you are reading this and are lucky enough to have healthy children....don't take it for granted!!
http://ghr.nlm.nih.gov/condition/hemophilia
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